Teddy is 136 days old, just shy of three weeks adjusted, and about a week and a half out of the NICU.
Life at home is good, if busy. We of course have many of the same concerns and challenges that all new parents do – multiple late night/early morning wake-ups, a plethora of dirty diapers, concern over whether he’s eating enough, concern over how much he is eating when one takes into account the cost of formula (that stuff is expensive!), etc…
There are a handful of extra challenges to having your very own micro-preemie at home, too. One is the multitude of different doctors appointments on the calendar, from his regular pediatrician to the opthamologist, pulmonologist, cardiologist, developmental specialists, etc. Thankfully both Abigail and I have been able to take some time off work to make those happen, and the news thus far has all been positive. Teddy’s ROP remains stable, his lungs remain damaged but clear, he’s growing at a normal rate, and he seems to be meeting appropriate developmental milestones for his adjusted age. We were particularly proud of his ability to roll over repeatedly from stomach to back yesterday during tummy time.
Around the house, too, things are a little bit different from your typical baby, as Teddy is tethered to a large oxygen compressor that has to go with him any time he moves around the house. So he basically spends his days in the living room and his nights in his nursery, and not a lot of time anywhere else. We do have a portable oxygen tank for outside excursions, and in addition to his doctors appointments, Teddy’s been on a handful of walks around the neighborhood, which he thoroughly appreciated by sleeping through.
Teddy also has an oxygen saturation monitor, which, as predicted by the nurses, has become something of the bane of our existence, while at the same time granting us a significant measure of peace of mind. Contradictory enough? The peace of mind comes from knowing that we will be woken abruptly by blaring alarms should our little boy stop breathing. The bane of our existence comes from the fact that the probe (the “sticky” in actuality non-sticky part that wraps around his foot and takes his measurements) comes off ALL THE TIME, leading to false alarm after false alarm, sometimes at 2:14 in the morning.
Aside from those small challenges, though, we are a happy, complete family, thrilled to have our little boy home. The animals have adjusted fairly non-chalantly, which is good. We’re blessed to have Abigail’s mom, Marynell, staying with us, which makes a ton of difference in our lives right now. And we’ve been fortunate to have fun visits from HB’s friend Auntie Cohan from DC, our dear friend Maria from here in Ft. Lauderdale, and Mary Anne and Elena, our NICU primary nurse and her respiratory therapist daughter.
Thank you for all your support and interest. As has been the case recently, fortunately no news is generally good news – we’re just your typical over-tired parents trying to keep our mini-human fed and happy. So far so good!!